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Euthanizing children for convenience sakes?Follow

#1 Dec 13 2006 at 6:48 AM Rating: Good
I was listening to the radio on the way to work this morning (Mancow on The Lazer 103.3, syndicated in Des Moines, IA from who knows where. Westcoast?) and they were talking about the Notre Dame coach Charlie Weis and his daughter Hannah.

Hannah has Global Developmental Delays that prevent her from leading a "normal" life. This lead in to a discussion about Doctors in Britain wanting to euthanize (new born) children that are mentally challenged. I guess the Dutch are way ahead of their time.

Now obviously no one here is going to actually advocate the killing of children just to save some effort on the parents, the peoples taxes or any other reason they can cook up in support of this but what do you all say?

If you knew, beyond a shadow of a doubt, that your child (born with a debilitating issue) could not lead a normal life, in any shape or form, would you have them euthanized?
#2 Dec 13 2006 at 6:59 AM Rating: Decent
I'm a big fan of euthanasia.

There is a story in Italy at the moment about this guy who can't move and body parts, apart from his eyes. He's in a hospital bed, fed from a tube, and cannot do anythign, except look around. He's communicated that he wants doctors to cut off the machines that keep him alive. And yet, the doctors can't legally do it.

It's just insane. If I was in his position, I would want to die peacefully, and I would be extremely pissed off if someone denied me the right to die. not that anyone would notice I was pissed off, but I would bat those eyelids like there was no tomorrow.

I know, the slippery slope argument and all that. And I don't agree with euthanasia for disabled kids of course.

But if the person in question wants to die, and can communicate this desire, then what right does the state have to tell them they can't?
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#3 Dec 13 2006 at 7:01 AM Rating: Excellent
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Well, what's our standard for a normal life? Ability to dress and feed oneself? Low-level functioning in a group home? Achieving a college degree?

The only condition for which I'd personally consider a late term abortion or infanticide would be ancephaly.

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#4 Dec 13 2006 at 7:10 AM Rating: Decent
Samira wrote:
Well, what's our standard for a normal life? Ability to dress and feed oneself? Low-level functioning in a group home? Achieving a college degree?

The only condition for which I'd personally consider a late term abortion or infanticide would be ancephaly.



Wow, just wow. Smiley: cry

Edited, Dec 13th 2006 9:13am by Kaelesh
#5 Dec 13 2006 at 7:11 AM Rating: Decent
I agree the issue is much more difficult when the person can't express themselves, either because they babies, or are in a coma, or in such a vegetative state that they can't communicate with the outside world.

One "standard" is suffering. If the suffereing is great and constant, and there is no prospect of it getting better, then it's probably better to allow that person die. Most euthanisia cases don't actually involve killing someone directly, but switching off the machines that artificially keep someone alive. If you are kept alive by a machine, and are in constant pain, then is it "ethical" to prolong the suffering?
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#6 Dec 13 2006 at 7:26 AM Rating: Decent
I'm torn on this issue. The arguments about quality of life vs value of life both make sense to me.

And that's all I have to say about that.
#7 Dec 13 2006 at 7:26 AM Rating: Good
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Terminating a pregnancy is one thing. If the doctor advises it, and the condition is incompatible with life (i.e., child could not survive outside the womb), I would term the pregnancy. However, once that kid pops out, I'm behind him 100% and let the chips fall where they may: 4 days, 40 years. Nothing in my life has ever done anything but make me better, even as it sometimes made me suffer. Any kid of mine has those genes and I wouldn't underestimate them or the value of their presence.

Edited, Dec 13th 2006 9:31am by Atomicflea
#8 Dec 13 2006 at 7:30 AM Rating: Decent
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Now obviously no one here is going to actually advocate the killing of children just to save some effort on the parents, the peoples taxes or any other reason they can cook up in support of this but what do you all say?


What advocating the ending of decades of useless suffering for the child and the parents both instead of insisting on them leading a torturus painful burdensome existance?


If you knew, beyond a shadow of a doubt, that your child (born with a debilitating issue) could not lead a normal life, in any shape or form, would you have them euthanized?


My child, no. That doesn't mean that by default everyone else in the world should be forced to ascribe to the same ethical standard. This is a simple issue only to simple people incapable of seeing other points of view.

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#9 Dec 13 2006 at 7:46 AM Rating: Excellent
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This is a touchy issue with me, thus the several times I have clicked the thread and then back paged.

I agree with Flea to an extent, if it is a fetus and will be inviable, why cause the mother greater suffer to actually finish the pregnancy, go through labor and have the baby only to watch it die in her arms. To some this may be a way to say good bye, IMO, I consider it self inflicted suffering.

Now as children or those like Alzheimer's patients. My friend is married to a man who has an asperger's. He is border line autistic and I personally cannot be around him for more than a couple of hours as his continuous yelling and crying play great havoc on my sensitive nervous system. Do I think he should have been euthanized? No. What if he was mine? I would have to live it to be sure. But if I had to answer, I would probably terminate with great sorrow. There are extenuating circumstances behind my answer, please do not think I am a selfish *****. Oh wait, I am.... no matter.

Now, what if your child is so disabled that constant care is required, and this care cannot be done from your home. If you can't provide care, the state will provide care and in most cases, this is substandard care. Just as Alzheimer's patient's are thrown into group homes, usually long forgotten and poorly cared for. In some cases, a euthanization may be the humane option.

I am not sure pulling the plug would fall under this type of category, as in most cases the individual cannot survive without the use of machinery in some form. Here's where the touchy part comes in...

My mother was drugged by another person, enough to stop her from breathing. I found her propped up against a dresser, still alive, but barely. I don't recall everything but from stories through the years, my grandmother had the arduous task of deciding to turn off my mother's breathing machine. The doctor had stated my mother was brain dead and nothing more would become of her, so why prolong hers and my family's suffering? If I would have been asked, at 5, I would have insisted to leave her, so that I would have her. In my grandmother's state, she was giving the doctor the ok to let her oldest child die.

This brings up the Shavo case, that was ridiculous, and I comment my grandmother for her strength to turn of my mother's machine at that time. If she would have waited until I was 15, 30, next year? I may not have handled that well at all. i have the memories of my mother and she was beautiful and a great person. The Shavo family, has memories of hospitals, trials, bad publicity. I win.

I really honestly think it comes down to personal preference and circumstances surrounding that particular issue. If I were told that I would have a child that would be retarded, require specialized care costing millions, etc. I would prebably terminate due to the fact that I have two other children that also require my time, and as a single mother, time is slim and next to none around here.

So, that's my Smiley: twocents
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#10 Dec 13 2006 at 7:56 AM Rating: Excellent
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Million Dollar Baby always seems to come to mind when this topic is brought up.
#11 Dec 13 2006 at 8:04 AM Rating: Decent
Nizdaar wrote:
Million Dollar Baby always seems to come to mind when this topic is brought up.


Except I'm talking about new-born children and not some over-aged pseudo-boxer in a shit Clint Eastwood movie that got her neck snapped.
#12 Dec 13 2006 at 8:42 AM Rating: Excellent
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I can't honestly say what sort of condition it would take for me to have an abortion, but I will always advocate for the right to do so even if it isn't something that I feel I could personally go through. I guess, since we're being vague about the condition in question, that I would say the same here.

Nexa
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#13 Dec 13 2006 at 8:48 AM Rating: Good
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cue METALLICA



























































Darkness Imprisoning Me!
All That I See!
Absolute Horror!!
I Cannot Live!
I Cannot Die!
Trapped in Myself!
Body My Holding Cell!!!!!

dennananaNANAdenananaANANA!!

Landmine Has Taken My Sight!
Taken My Speech!
Taken My Hearing!!
Taken My Arms!
Taken My Legs!
Taken My Soul!
Left Me with Life in Hell!!!!!!

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#14 Dec 13 2006 at 8:53 AM Rating: Excellent
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Kelvyquayo the Irrelevant wrote:
cue METALLICA


Confession time: I have, in a box somewhere, the VHS "Two of One" which has both versions of the video and a making of special. I do not know where I got it.

Nexa
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#15 Dec 13 2006 at 8:56 AM Rating: Good
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Quote:
the VHS "Two of One" which has both versions of the video and a making of special.


I totally saw that

^^y rock on


actaully in retrospect.. it may be one of the first things that I saw that made me think about such things....
with the "Johnny Got His Gun" story.. and him wanting to die but no being able to tell anyone... Kinda made me think a bit.. a far stretch at that age.
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#16 Dec 13 2006 at 9:00 AM Rating: Excellent
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I'm ashamed to say that my most vivid memory of the literary masterpiece Johnny Got His Gun was when the main character was frantically banging his head, trying to communicate, and the nurse beats him off to quiet him down.

But I read it in 9th grade so my mind was on other things beyond the horrors of war.
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Wow. Regular ol' Joph fan club in here.
#17 Dec 13 2006 at 9:02 AM Rating: Decent
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[/b]
But I read it in 9th grade[/b]

...and sprinted to the school nurse and started bagning my head on the wall.

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Disclaimer:

To make a long story short, I don't take any responsibility for anything I post here. It's not news, it's not truth, it's not serious. It's parody. It's satire. It's bitter. It's angsty. Your mother's a *****. You like to jack off dogs. That's right, you heard me. You like to grab that dog by the bone and rub it like a ski pole. Your dad? Gay. Your priest? Straight. **** off and let me post. It's not true, it's all in good fun. Now go away.

#18 Dec 13 2006 at 9:06 AM Rating: Excellent
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I wish I'd thought of that. Would have been easier than cutting off my arms and legs Smiley: frown


The second arm is the tricky one
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Wow. Regular ol' Joph fan club in here.
#19 Dec 13 2006 at 9:10 AM Rating: Decent
nice try but its [b][/b]
#20 Dec 13 2006 at 9:53 AM Rating: Good
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This subject hits a lot of buttons for me right now, for obvious reasons.

In another thread a few months ago, I brought up the subject of terminating pregnancies for fetal defect. Mr. Ambrya and I are two weeks away from our big ultrasound, where not only will we (hopefully) find out the sex of the baby so we can stop referring to the baby as "it" but also look for anatomical indications of defects. They'll be able to check if the heart has all for chambers, or only three, if the size of the cranium is indicative of trisomy-21 (Down's Syndome), trisomy-18 Edward's Syndrome, or Anecelphaly or Hydrocephaly (water on the brain) and check the spine for Spina Bifida.

I decided before we even conceived that I wanted us to have our threshold established in advance for when we would decide to interrupt the pregnancy, so that should we find out news of this devastating nature, we wouldn't be faced with having to make a choice while we're stunned, heartbroken and grieving. So there have been a few heavy conversations in our household over the past few months.

At the same time, however, we declined having the test known as the "quad screen" done (sometimes referred to as the triple-screen plus AFP) which is a blood test to determine the presence of certain hormones which MIGHT be indicative of defects. The reason we declined the test is because it doesn't actually tell you anything. Even if it's positive, it only tells you the fetus is *at risk* for certain defects, not that it actually has those defects. Typically, a positive result is followed up by an amniocentesis, which poses a risk of miscarriage, and I wasn't willing to run that risk on a mere "maybe." Furthermore, the rate of false positives (where the test is positive, but subsequent testing reveals no defects) is quite high, and I didn't want to put myself through that emotionally. We actually had an early miscarriage (5 weeks) this summer, not long before I conceived this baby, and so the first trimester of this pregnancy coming on the heels of that experience has been pretty fraught for me, with every little possible hint of irregularity escalating my stress level though the roof. I didn't feel the chances of actually finding out anything useful justified putting myself through that sort of emotional roller coaster.

So we decided to wait for the ultrasound/anatomy check. Unfortunately, since the quad screen is done a bit earlier than the ultrasound, it means the window for taking action if it turns out something is wrong is a bit shorter. But we'll still have some time.

Defects that are incompatible with life were pretty easy to decide upon, because the risk to my health completing the pregnancy and going through delivery would not be justified if there were no chance of the baby surviving. Defects such as Hypoplastic Left Heart Syndrome, where there is *a chance* of the baby surviving are a bit harder, and it was here we had to weigh some quality of life issues. With HLHS, in order to survive, the baby would have to endure three heart surgeries before the age of 2, and would need a heart transplant by the age of 15. He or she would experience severe pain with those surgeries, would never be able to dance or do gymnastics or play tag or do most other "normal" physical activity. And if a heart transplant couldn't be found, would die in the end despite all that suffering. So while there is technically "hope" it didn't seem to me that it was GOOD hope. It seems more like cruel hope, the kind that results in more suffering than can really be justified by the chances of a positive outcome. So we also decided we would interrupt the pregnancy in the event of a defect of that nature as well.

As far as something like Down's Syndrome goes, however, we wouldn't. When we decided to make a baby, we didn't put any qualifiers on it that it has to be a "perfect" baby. And frankly, I'm a bit concerned with the fact that we're trending toward "designer kids" where parents with enough money can not only decide the sex of the baby they want to have, but other genetic traits, before conception. We understand that depending on the severity of the Down's Syndrome (which there is no way of predicting) that it could be a very difficult, painful life for the child and a huge burden on us as parents, but ya know, when it comes to making babies, ya rolls the dice, ya takes your chances. There are plenty of Down's children out there who are high functioning and utterly delightful people, and in a situation like that, it doesn't seem to me that false, cruel hope outweighs merciful hope.

I'm all for the right to die. I'm extremely proud to live in the first state in the union to pass a Death With Dignity act (and we passed it TWICE, f'uck you, John Ashcroft!) and if the day ever comes when the only hope for me is cruel hope filled with suffering, I'll avail myself of that right.

But as for euthanizing children who are born mentally challenged? Disgusting and obscene. I really can't be more eloquent on the topic than that. Having made my/our choice that if fate sends us a mentally challenged child, we will embrace him or her, the idea that someone would treat such a child as garbage to be discarded at will is absolutely abhorrent to me. Admittedly, this is not a subject on which I am capable of NOT being emotionally invested at this time, but it's still repugnant.



Edited, Dec 13th 2006 1:01pm by Ambrya
#21 Dec 13 2006 at 10:10 AM Rating: Excellent
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When I was pregnant, I opted to have every single test for anything that they offered. This wasn't because I had a decision to make regarding whether or not to terminate a pregnancy, but because if there was going to be a birth defect or condition, I wanted as much time to educate myself on treatment options and care techniques as possible.

Nexa
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#22 Dec 13 2006 at 10:10 AM Rating: Good
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Ambrya, do you have anything in your family history that warrants suspicion of birth defects?
#23 Dec 13 2006 at 10:25 AM Rating: Decent
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Atomicflea wrote:
Ambrya, do you have anything in your family history that warrants suspicion of birth defects?


Not genetic abnormalities, no. My brother is somewhat learning disabled as a result of Fetal Alcohol Syndrome courtesy of our alcoholic mother, and my aunt believes I might have a touch of it as well (she refuses to accept the diagnosis of ADD for some reason) though not to the extent of my brother.

Mainly, this subject just was brought up by a friend at a time when I was particularly vulnerable toward the idea that something might go wrong either trying to conceive or with the pregnancy itself (there was a while I was worried about having trouble conceiving because I have a thyroid issue, which can often lead to fertility troubles) and since then, it's been really heavily on my mind that I don't want to be caught unprepared for the eventuality.

I'm certain there's nothing wrong. But then, I was certain I wasn't going to miscarry this summer the first time I conceived either, so if the past six months have taught me anything, it's that my certainty isn't worth all that much. I just really don't want to have the boom lowered on us and then have to make an actual decision about what to do when we may only have a couple weeks before our options are gone.

#24 Dec 13 2006 at 10:30 AM Rating: Decent
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Nexa wrote:
When I was pregnant, I opted to have every single test for anything that they offered. This wasn't because I had a decision to make regarding whether or not to terminate a pregnancy, but because if there was going to be a birth defect or condition, I wanted as much time to educate myself on treatment options and care techniques as possible.

Nexa


I get that, and had I been in a different place with this pregnancy, its likely I would have chosen to do the same. As circumstances played out, though I was SO hypervigilant and overstressed about this pregnancy that I felt it just wouldn't be a good option for my mental state.

#25 Dec 13 2006 at 10:34 AM Rating: Excellent
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When my cousin was pregnant, she had some screening done which involved poking a needle into the womb to extract some of the fluid. Of course, the doctor/nurse doing it (I'm sketchy on the details) managed to give the fetus a sharp poke in the head in the process and there was the immediate spectre of brain damage.

Fortunately, the baby came out fine (if premature) and I don't share this to scare anyone away from testing but just to roll my eyes and note that sometimes it seems like you're doing all you can and you still get screwed for it.
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#26 Dec 13 2006 at 10:34 AM Rating: Excellent
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Ambrya wrote:

I get that, and had I been in a different place with this pregnancy, its likely I would have chosen to do the same. As circumstances played out, though I was SO hypervigilant and overstressed about this pregnancy that I felt it just wouldn't be a good option for my mental state.


Perfectly understandable. I avoid reading the news many days for the same reason. :D

Nexa
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― Neil Gaiman, The Sandman, Vol. 9: The Kindly Ones
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