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#1 May 31 2006 at 8:28 PM Rating: Excellent
For those who I played with in WoW and remember me talking about my daughter, I wanted to share.

We took her to her 1 year checkup, and we told the Dr that she's been bruising very easily, small bumps and and falls cause her to have deep, dark bruises. The Dr wanted to do a CBC on her (not sure what that stands for) to see how many platelets she has. This first test showed she had 26,000.

The Dr informed us that 125,000-150,000 is normal, and anything below 20,000 is worriesome. She told us to come back in a week to have her tested again. We did so, and last week her platelets had fallen to 24,000. We were asked to come back again. After a hellish day today, involving finger pokes and tests not working, we were finally directed to go to the hospital and have blood drawn from her arm. We just got the call and her count is now down to 14,000.

We're scared of course. The Dr wasn't there when the PA called so we're going to get a call from the Dr tomorrow morning. The PA told us that we may have to take her to Children's Hospital in Omaha and see a hemotologist. Possible courses of action could be intravenous immunohemoglobin or steroids, or even a platelet transfusion if it gets really bad. They told us to take her out of daycare for tomorrow.

They think it may be from a virus that looks like a platelet so when the antibodies attack the virus they also attack the platelets. It might also be a reaction to a vaccination. They really haven't said much more than that.
#2 May 31 2006 at 8:31 PM Rating: Excellent
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First things first: best wishes to your family. I hope it's nothing more serious than a little viral infection.

CBC = complete blood count. Here's hoping the next one is better news.
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#3 May 31 2006 at 8:33 PM Rating: Excellent
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Oh Wint, hang in there honey! I know it's scary, but just try to stay away from thinking about what ifs and worse case scenarios. Waiting is horrible but cuddle her and see what the doctor has to say and update us when you can please. Hug her extra for me.

Nexa
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#4 May 31 2006 at 8:35 PM Rating: Excellent
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That's terrible. FYI in case you didn't know, if it is a reaction to a vaccination there is a federal fund setup that will pay the medical costs associated with treating it.
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#5 May 31 2006 at 8:37 PM Rating: Excellent
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Oh Wint Smiley: cry hang in there! We are all pulling for you and your little one. I know that you want to hold her extra, but don't forget you and your wife need extra hugs from each other too. Please keep us updated!
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#6 May 31 2006 at 8:40 PM Rating: Good
I think the thing that is keeping us calm is that she acts and plays like normal. Other than the brusing, you couldn't tell that anything was wrong with her. My mother is freaking out (her first grandchild) but I'm keeping pretty calm for the most part.

Looking forward to a day to play with her actually :) I'll have to remember not to play as rough.

They called her condition ITP, or Idiopathic Thrombocytopenic Purpura, which according to the link is an autoimmune bleeding disorder. It sounds like most of the cases (90%) are acute, and go away but the other 10% are chronic.

We'll see.
#7 May 31 2006 at 8:40 PM Rating: Excellent
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Sorry to hear about your daughter's illness. I'll be adding her and your family to my prayers tonight, buddy.

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#8 May 31 2006 at 8:41 PM Rating: Excellent
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I'm sorry for what you're going through. I'll keep your daughter in my prayers and best of luck and comfort to your family.
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#9 May 31 2006 at 8:46 PM Rating: Excellent
Wint, I honestly hope she pulls through. She's adorable.

Problems with blood are scary and real. I lost a cousin last year to Aplastic Anemia. He was only 9.

Please keep us posted.





Edited, Wed May 31 21:47:16 2006 by Elderon
#10 May 31 2006 at 8:48 PM Rating: Excellent
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Elderon the Wise wrote:
Wint, I honestly hope she pulls through. She's adorable.

Problems with blood are scary and real. I lost a cousin last year to Aplastic Anemia. He was only 9.



Eldy, you know I love you, but this is an example of a not helpful post.

Nexa
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#11 May 31 2006 at 8:52 PM Rating: Excellent
I honestly wasn't trying to be insensitive. Smiley: frown
#12 May 31 2006 at 8:53 PM Rating: Excellent
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Extra happy thoughts to you and your family Wint. I know how scary it is and stay away from all those websites where you plug in the symptoms and they give a diagnosis. I know you're wanting answers right away, but trying to find out on your own at this early in the stage will cause a lot of unneeded mental anguish.
#13 May 31 2006 at 8:54 PM Rating: Excellent
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Elderon the Wise wrote:
I honestly wasn't trying to be insensitive. Smiley: frown


I know dear. Smiley: smile

Fortunately, Wint isn't nearly as impressionable as I am. Were it me, I would have jumped to the immediate conclusion that my child had whatever ailment you cited. Maybe only for a minute, but certainly a panicky minute.

Nexa
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#14 May 31 2006 at 8:58 PM Rating: Excellent
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That sounds like what I would have done Nexa!
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#15 May 31 2006 at 8:58 PM Rating: Excellent
Nexa wrote:
Elderon the Wise wrote:
I honestly wasn't trying to be insensitive. Smiley: frown


I know dear. Smiley: smile

Fortunately, Wint isn't nearly as impressionable as I am. Were it me, I would have jumped to the immediate conclusion that my child had whatever ailment you cited. Maybe only for a minute, but certainly a panicky minute.

Nexa
I'm no expert, but from what Wint has mentioned and what I know about A.A., she does not seem to have the same thing because he mentioned something about it being virus related. A.A. is a sudden problem with the bone marrow ceasing to produce red blood cells. So on a good note, she probably doesn't have that! Wheee!


Better?
#16 May 31 2006 at 8:58 PM Rating: Excellent
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Hang in there Wint. Keep us updated on whats going on. Your child and your family are in my thoughts and I wish nothing but the best news for her in the upcoming weeks. Now, stop posting here and go cuddle with her
#17 May 31 2006 at 8:59 PM Rating: Good
That is frightening. Nothing, absolutely nothing, is worse than worrying over a sick child.

It sounds encouraging that the most likely culprit is primarily an accute disorder and not often chronic as you said.

Here's wishing the little one a speedy recovery.

Edited, Wed May 31 22:07:53 2006 by fortnight
#18 May 31 2006 at 8:59 PM Rating: Good
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Smiley: frown

words fail me, sweet lord I hope everything work out.
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#19 May 31 2006 at 9:17 PM Rating: Excellent
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On a side note, "Idiopathic Thrombocytopenic Purpura" is medico-speak for "a bruising condition due to low platelets. We don't know why."

Doctors don't know everything. Push them for answers when you feel like you're getting an incomplete story. Ask for a second opinion, and a third.

Hope she gets better soon. Glad to hear that she, at least, isn't worried sick!
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#20 May 31 2006 at 9:22 PM Rating: Good
No worries Eld, I don't panic easily :) It's definately something to take seriously though.

She's sleeping now, had a very rough afternoon. Her mother and I are sitting here talking to family members who are all taking this a lot harder than we are.

Samira, that's kinda what I got from the description, it sounds like the chances are high that this is a one time thing, we just need to get her antibodies to stop killing her platelets off. I imagine there are several ways to do it, and Children's Hospital is an excellent hospital. We had a co-worker who delivered her baby at 26 weeks there, and that tiny little girl is doing just fine now so I have faith we will be in good hands.

Thank you everyone for the kind words, it's a great help and comfort to be able to talk about it.

Edited for redundancies

We're sitting here watching "Whatever Happened to Baby Jane" while on the phone. What a bizarre movie.

Edited, Wed May 31 22:26:24 2006 by Wint
#21 May 31 2006 at 9:23 PM Rating: Excellent
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I wish you and your kid the best, Wint
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#22 May 31 2006 at 9:28 PM Rating: Excellent
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Wow Wint, I'm sorry to hear that your daughter is going through that. My mom has a very similar condition, called idiopathicthrombocytopenic Pupura or something close to that. Basically her spleen was eating her platelets. In her case they think it was caused by an allergic reaction to something initially. They eventually had to remove her spleen to combat it, but that did take care of it. That was about 10 years ago now, and they apperently have much better medicines for controlling it these days.

She's not a doctor or anything, but she's as close to an expert on the subject relating to at least what she has as anyone I've encountered. If you like, PM me and I can put you in touch with her if you want to get the "somoene who has been there" perspective on it.

On the bright side, once they do cure it, her platelets may rebound to extra production, so she'll have these awsome wolvereene like healing powers or something!

Hopefully she'll have an easy to treat variant


Edited, Wed May 31 22:29:16 2006 by Kaolian
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#23 May 31 2006 at 9:53 PM Rating: Good
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Will pray for you and your child. Hang in there - sounds like you're handling it well. Keep up the great work!
#24 May 31 2006 at 10:04 PM Rating: Good
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Quote:
we just need to get her antibodies to stop killing her platelets off. I imagine there are several ways to do it
To my knowledge, the main purpose of steroid treatment is to supress the immune system for whatever reason. It seems to generally be quite effective.

Your family will be in my thoughts. It sounds like she's in good hands and I'm sure she'll be just fine.
#25 May 31 2006 at 10:09 PM Rating: Good
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You and your family will be in my prayers tonight Wint.
#26 May 31 2006 at 11:55 PM Rating: Good
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I'm sure it'll all turn out for the best. Good luck!
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