i watched a story about this on discovery channel on a boy who was a little worse off.
it is actually the material that makes up our teeth growing rapidly. it is actually bone.
for the boy, they carved a face out of teh tumor itself to give him a jaw, cheeks, chin. he lived for a few years afterwards, but died of an infection in the end.
the problem is, they cannot controll the growth after they carve it up. their plan was 2 or 3 more operations intill he reached adulthood and his bones stoped growing, then make a finale face for him.
my heart bleeds for her. atleast there is some hope for her, where as in the past, the bone would eventually close off her mouth all together and starve her to death, or would block her throat passage eventually killing her also.
no one knows why the material explodes in growth as it does, it is a form of cancer. God bless her.