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Tourette's syndrome personal account part 1: ConsFollow

#1 Sep 11 2005 at 3:35 AM Rating: Default
God damnit, I just have to be one of the very few kids in my school with Tourette's syndrome, what a fu[/b]cking gyp.

You'd think that at least in a mildly "accepting" society a person with Tourette's syndrome wouldn't stand out so goddamn much, but sadly no. You yell and twitch a little and suddenly you're some sort of freak, I hate this sh[b]
it.


Also, at school, my verbal tic really gets to me. I yell out random things, and as of late, cusses. For example I'll just be walking down the class hallway and suddenly yell out: "MY *** IS BLEEDING!, HOLY ****!!" Some laugh, some get nervous, and some just plain stare. Looking at it realistically, I understand I'm creating a scene, and I realize it is frightening, and I know it looks funny, but at least don't call me a freak or a fu[/b]ckhead, those are feelings about myself I try very hard to suppress.

I went to the Grocery store the other day, and my my motor tic was acting up, so I was twitching like hell. The worst part isn't the twitching, it's just the way you can see people staring at you in the corner of your eye, and see people whisper to each other and so on, it's embarassing. Look peoples, if you are curious, don't stare and look away ashamed when I turn my head, don't whisper to other people about it, just [b]just ask me,
give me some fu[b][/b]cking closure here.


Here, I'll even answer some FAQs for you curious types:


Q: Are you some sort of monster or something?
A: No, I am normal, I can actually be pretty nice at times.

Q: Why don't you try to stop your twitches and outbursts?
A: Because it feels like I'll explode when I try, it's almost like holding my breath.

Q: Is life hard with Tourette's Syndrome?
A: It's troublesome, but not hard. I wouldn't be able to compare it to something like a physical disablilty, but it is a pain.

Q: Is it hard to socialize with Tourette's syndrome?
A: In some ways it has brought some positive attention to me, and has served as an icebreaker, and I get a little slack and sympathy. The toher side of it is that ignorant people, and people who don't know me might get a bad impression. Also, it's a little hard to get together and date with girls when your tics act up. I believe it'd serve me better socially if I didnt have it.

Q: Do you scream at small children?
A: I try incredibly hard to avoid doing that.




So yeah, discuss and stuff.
#2 Sep 11 2005 at 6:39 AM Rating: Decent
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Pros: Can call someone a cockface and blame it on the Tourette's.
#3 Sep 11 2005 at 7:52 AM Rating: Good
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Sounds like Fu[i][/i]ck you! somebody needs a hug.

#4 Sep 11 2005 at 8:49 AM Rating: Decent
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PROS: From what I've seen, you'll make a loveable bartender. Are you Irish? Bartenders around here (even crappy ones) can make a cool 50-60k/yr. Its not all bad.
#5 Sep 11 2005 at 9:25 AM Rating: Good
Ministry of Silly Cnuts
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cu[i][/i]nt
#6 Sep 11 2005 at 2:20 PM Rating: Good
Tracer Bullet
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By the time you get to college, people will stop calling you a freak or a fu[b][/b]ckhead or whatever. Sure, people will still stare and get weirded out, but the petty bullying of high school goes away.


#7 Sep 11 2005 at 2:25 PM Rating: Good
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Is this supposed to make you less mediocre?
#8 Sep 12 2005 at 12:31 PM Rating: Excellent
Code Monkey
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Meh, I have a friend with Tourette's, he deals with it just fine

The bartender from Boondock Saints is the bestest though
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#9 Sep 12 2005 at 12:50 PM Rating: Decent
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Danalog wrote:

The bartender from Boondock Saints is the bestest though


Someone else thought what I was thinking! Yays!!oneone.
#10 Sep 12 2005 at 1:48 PM Rating: Decent
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I also have Tourette's Syndrome. It's nothing like what the movies show. It's tough when you try to meat new people, but things will get better over time. The important thing is to keep your cool. Remember that many peers will tease you because they have low self esteem also. Pitty them, don't get angry.

If your parents try to tell you to stop twitching, shouting, etc, try to explain to them that it is not a good idea to do that. Eventually you will learn (if you haven't already) to control it when needed. However, you can only hold it for so long before it erupts even worse.

I used to feel that I should wear a sign saying, "Yes, I have Tourette's. Are you happy now?", but that wouldn't have made a difference. People will always gawk and stare and whisper. You get used to it. Now I'm 26 and have no problem letting people know what I have.

One thing to be aware of... Never let someone with Down's Syndrome know you have Tourette's Syndrome. They are very nice people, but when they learn you have a "syndrome", they will have a sudden affinity for you. You have something in common and that makes you best of friends. That is quite annoying.

That's all I can think of for advice at the moment. I may post more as the day progresses.
#11 Sep 12 2005 at 2:21 PM Rating: Decent
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Quote:
One thing to be aware of... Never let someone with Down's Syndrome know you have Tourette's Syndrome. They are very nice people, but when they learn you have a "syndrome", they will have a sudden affinity for you. You have something in common and that makes you best of friends. That is quite annoying.


Retards need friends too jackass.
#12 Sep 12 2005 at 2:22 PM Rating: Decent
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I have no response to this.
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#13 Sep 12 2005 at 2:25 PM Rating: Good
/Hi jack

MentalFrog, I saw that episode of FamilyGuy that your avatard came from last night. (The mind-control cheerleader one where Peter learns he's 'black'. When I saw the scene in your avatard, I laughed and told my wife (as she walked by) that some guy from the forum had that scene as his avatard and she looked at me funny. Smiley: dubious
#14 Sep 12 2005 at 2:27 PM Rating: Decent
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Dear diary: Jackpot!
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#15 Sep 12 2005 at 2:32 PM Rating: Decent
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Smiley: laugh Elderon

I stopped telling any stories or jokes about the forum. And sometimes when I tell jokes I leave out the part of where I heard it from. People look at you funny and ask "where?, who?, what?".
#16 Sep 12 2005 at 4:17 PM Rating: Good
Ministry of Silly Cnuts
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Tourettes?
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"I started out with nothin' and I still got most of it left" - Seasick Steve
#17 Sep 14 2005 at 6:00 AM Rating: Decent
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Fu[/i]ck! A[i]ss!
#18 Sep 14 2005 at 6:14 AM Rating: Good
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Just consider it a gift. I wish more than anything that I could scream, "FU[/i]CK YOU, YOU FU[i]CKING CU[i][/i]NT!!!!!!"
And I suppose I could, but I can't justify it like you can. :(
#19 Sep 14 2005 at 9:02 AM Rating: Decent
NaturalDisaster the Silent wrote:
Fu[/i]ck! A[i]ss!


He knows too much!
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